Disclaimer

*Results may vary. The information in this site is NOT to be construed as medical advice. Cirrhosis of the liver is a serious condition and if you have it, you should see a doctor. I am not a doctor and am not able to dispense medical advice. My husband saw a doctor (many of them) and they were able to do things for him that I could not. However, they were unable to recommend alternative treatments, and in MY OPINION they were VERY beneficial to my husband, so I am providing some of that information here. My husband and I tried all of these alternative therapies at our own risk, and if you try them you will be doing the same. At your own risk. No promises are made in this blog. I am not saying there is a cure for cirrhosis or any other condition. However, I believe most people can get well, like my husband did. My husband is alive, happy, productive, functional and has his energy back. He no longer worries about having to go on disability or getting a $577,000 liver transplant. Cirrhosis is a serious condition. He is currently in the fibrosis stage (Stage 2 liver disease), which is still serious. I cannot guarantee you will have the same results. I just want you to know about what worked well for my husband. I hope you will share what you learned with others, and share your story with us as well. This blog was made for YOU! Thanks for visiting!

Friday, July 12, 2019

Two books / audiobooks I highly recommend

Over the last few months, I've been listening to 2 really good audiobooks (shown below), about the liver / gastrointestinal system, while I do housework. I will admit, they're long, and I sometimes have to rewind or hit pause, to understand everything they're saying. Sometimes, this medical/educational stuff isn't as much fun to listen to, while doing housework, as, say... Madonna's Immaculate Collection!

But once in a while, I get a really good tidbit that makes me feel like, it was worth it to tune in. And I can't tell you how many times I've thought, while listening to these books: "Why weren't ALL OF US taught this stuff in school????" We'd all be so much healthier!

We are given SO LITTLE information about how to take care of our own bodies, especially our liver and the associated organs like the pancreas, gallbladder, etc.. The whole gastrointestinal system is like a giant mystery, to many of us... until something goes drastically wrong, and by that time, it can be too late (or extremely costly) to fix the problems.  

Sometimes it feels like we should be given an Operating Manual for the human body. Sadly, it also sometimes feels like, even if we had one, doctors would be perfectly happy to rip it up and keep us in the dark. It's like, the less we know about how our bodies truly operate, the more money there is to be made. The less we know, we more we have to spend on trying to fix our medical issues that have been gotten way out of hand. 

I'm sorry but that just seems wrong, to me. The best doctors in the world, are the ones who are happy if you DON'T have to see them. But sadly, people with cirrhosis have to keep seeing doctors over and over again!

Anyway, I had to share these books with you, because they're just about the closest thing I've read to having an "operating manual" for your gastrointestinal system. I have really been enjoying these audiobooks (via my Audible.com subscription), and what the author says in Medical Medium backed up my theory that the water I keep talking about really was a huge factor in helping my husband with his liver. 

In addition, what Dr. Shinya (inventor of the polypectomy) says in The Enzyme factor is pretty interesting. He also explains how dairy products can be VERY damaging for human health. Please check out these books if you get a chance. They may even be available at your local library.



I got this audiobook largely because the reviews were so impressive. There are nearly 1600 reviews, and the book currently has a 5 star average.

Medical Medium Liver Rescue: Answers to Eczema, Psoriasis, Diabetes, Strep, Acne, Gout, Bloating, Gallstones, Adrenal Stress, Fatigue, Fatty Liver, Weight Issues, SIBO & Autoimmune Disease


The Enzyme Factor also has very good reviews.

The Enzyme Factor


I cannot recommend this book enough! Dr. Shinya is a renowned gastoenterologist who invented the Polypectomy (the technique of removing polyps from the colon, using a snare). His wife, and his son, all suffered with health problems while consuming dairy products. His wife developed so many health issues, when she came to the US and adopted a standard American diet, that she actually passed away, which fueled Dr. Shinya's interest in human health, and how to turn things around before it became too late.

People with cirrhosis can struggle to process dairy products while their gastrointestinal systems are impaired. One of my husband's doctors that I like (an integrative medical practitioner) told us that dairy has a tendency to clog the liver, and if has any kind of impairment and is trying to heal, the dairy will make it harder to heal (because it's using energy to try to unclog itself, when really that energy should be used for healing itself).


About 10 years ago, I checked out this audiobook at the library, and it had some interesting tidbits about the human body, that I never knew (like the fact that urine is sterile, whereas, spit is FULL of bacteria, so therefore, spit is way more gross). I listened to this years before my husband was diagnosed with cirrhosis, so it would probably be even more interesting to listen to, now.



YOU: The Owner's Manual, Updated and Expanded Edition: An Insider's Guide to the Body that Will Make You Healthier and Younger










https://www.amazon.com/gp/product/0060765321/ref=as_li_tl?ie=UTF8&camp=1789&creative=9325&creativeASIN=0060765321&linkCode=as2&tag=heallivecir0b-20&linkId=fef49f1282b1ef862e2d83b674b4a22f
YOU: The Owner's Manual: An Insider's Guide to the Body That Will Make You Healthier and Younger










And lastly, as long as I'm posting books about interesting medical books... this is the book that originally opened my eyes to the idea that alternative medicine could actually have a lot of real benefits to it. Someone took me to hear Dr. Weil speak at a conference, and it really changed my life - I used to be one of those people who truly believed that DRUGS were THE way to get better, and that alternate routes were a waste of time. No joke, there really was a time that I really used to think that! I don't necessarily agree with every single thing Dr. Weil says, but overall, I think his book is definitely worth checking out.

Spontaneous Healing : How to Discover and Embrace Your Body's Natural Ability to Maintain and Heal Itself 

For anyone who cares to read or listen to this. I can almost guarantee you could find a copy at your local library, of the book and/or the audiobook.

Enjoy!

Ellie 





Tuesday, July 2, 2019

One more reason I'm not a fan of Lactulose... it can raise your INR! (Big factor in your MELD score)

7 years after my husband's initial diagnosis, I am STILL learning things about cirrhosis that surprise me. And I do a LOT  of research, people. Seriously, I've spent soooo much time in front of a computer, looking things up, sometimes I feel like I have no life. And yet, I STILL find new things that surprise me about cirrhosis. It truly blows my mind, how much cirrhotic patients and their loved ones are left in the dark about what's going on with their own bodies, and the side effects of their medications. And the lack of useful information that is shared with us!

I was doing some research tonight on blood clotting, and I came across this article / PDF in a google search.  I almost clicked off it, because it was a PDF and I was feeling impatient and just didn't feel like waiting for it to download and open (it didn't seem to be the information that I was looking for on coagulation, anyway). Plus, it looked like it was a list for senior citizens (I say that as if I'm soooo far away from being one myself, but it's less than 2 decades away!).

Well, something told me to go back and just have a look at it, because I knew there would be a list of different medications that could increase a person's INR (your blood's ability to coagulate - which is a MAJOR factor in your MELD score). 

Anyway, I was just about to click off the google search page I was on, thinking, well that page is mostly just for seniors.  There is STILL a naive part of me that thought, surely there wouldn't be anything alarming on that list that a doctor would give to a cirrhotic patient.  And then there's the other (burnt) part of me that said, well, maaaaaybe it's worth having a look, because there's a chance you're going to see something on that list that you're going to want to share with people, and chances are good that at least one person who reads the post is going to be on that medication. 

But I really did NOT expect that LACTULOSE was going to be on that list!  I just couldn't believe it!

I'm not saying that lactulose is a "bad" medication or that anyone should stop taking it. Taking lactulose is WAY better than, say, crashing and totaling your car because you just went catatonic behind the wheel (what happened to my husband when his doctor didn't prescribe lactulose).

But... I feel like, cirrhosis patients should know about these side effects, because in my opinion, the ultimate goal is to get off your medications over time (as you get well, of course, and your body no longer needs them).  I've found other things that have similar benefits to what you can get from lactulose (without the dangerous side effects), and just about everyone I've talked to, tends to HATE how they feel when they're on lactulose. I've heard so many people complain of gas, nausea, bloating, spontaneous pooping and farting, etc..  


For anyone who doesn't know, when your meld score is calculated, a 1-point increase in your INR (the difference between 1 and 2) can mean an 8-point increase in your MELD score (see photo below). You can find a MELD score calculator on THIS PAGE.




If it was ME, personally, who had cirrhosis, I would be trying to get off lactulose ASAP (PROVIDED that it was clear that my ammonia level was LOW, and I felt very clear minded, and of course, I should state that you should check with your doctor). The water I keep talking about has a similar effect to lactulose, in that it actually activates hydrogen, and it also cleans a person's colon out really well (like lactulose does, only better). So, sometimes I really have to wonder why we aren't given better alternatives. 

If I was trying to get off lactulose, personally, I'd DEFINITELY be taking probiotics, since they're known to reduce the risk of encephalopathy by up to 50%, and they also help things to move out of your digestive tract. There are a bunch of other things I'd be doing, as well, but those are the main ones. 

I also want to share this with you... I just learned tonight, from this same PDF showing the "lactulose warning" - that GREEN TEA is another one of those things that can LOWER your INR.  It's funny how they make it sound like it's a BAD THING, but that's mainly just bad IF you're taking Warfarin (or your blood clots too much). So for a person who isn't clotting well, green tea could be a really GOOD thing!  So much of good health is about just being able to bring the body back into balance.




 https://www.ncbi.nlm.nih.gov/pubmed/10332534

Probable antagonism of warfarin by green tea.

Abstract

OBJECTIVE:

To report a case of the inhibition of the effect of warfarin by green tea.

CASE SUMMARY:

A 44-year-old white man was receiving warfarin for thromboembolic prophylaxis secondary to a St. Jude mechanical valve replacement in the aortic position. The patient had an international normalized ratio (INR) of 3.20 approximately one month prior to entering our clinic, and an INR of 3.79 on entering our clinic. Twenty-two days later his INR was 1.37. One month later the patient's INR was 1.14. It was subsequently discovered that the patient began drinking one-half to one gallon of green tea per day about one week prior to the INR of 1.37. On discontinuation of the green tea, the patient's INR increased to 2.55.

DISCUSSION:

Warfarin produces anticoagulation by inhibiting production of the vitamin K-dependent clotting factors (i.e., factors II, VII, IX, X). The exogenous administration of vitamin K inhibits the effect of warfarin and reduces a patient's degree of anticoagulation. Green tea can be a significant source of vitamin K and thus antagonize the effect of warfarin.

CONCLUSIONS:

Warfarin is a highly effective oral anticoagulant, but it requires close monitoring to prevent complications. Patients receiving warfarin need to be routinely questioned about their intake of vitamin K-containing foods and beverages.


What is a normal INR?
Here's what came up in Google:
In healthy people an INR of 1.1 or below is considered normal. An INR range of 2.0 to 3.0 is generally an effective therapeutic range for people taking warfarin for disorders such as atrial fibrillation or a blood clot in the leg or lung.Nov 6, 2018



Doctors REALLY DO NOT LIKE to lose control of their ability to MONITOR YOU.
I guess I do understand this. If you're going to go and see them, they feel like they need to guide you, and they can't do this as easily if you're doing all kinds of thing that are "off course" from what they're used to seeing. But I still don't think patients should be left in the dark, to the degree that they are.


Had to share this with you guys. Hope this helps. 

Ellie



Wednesday, May 1, 2019

If you've tried to get in touch with me, but haven't heard back - please try again

 
This message is for anyone who has tried to contact me in the last year, but couldn't...

I'm sorry if I've been out of touch for a lot longer than I anticipated I would be. This last year, I went through a major crisis. Because I was having to focus all my energy on trying to save my friend Jane's life, and then on keeping my own head above water, I was not able to talk to a lot of people on the phone. 

I felt so overwhelmed during this time, I started to lose track of some of the people who had contacted me (and whom I had contacted).  Sometimes, people would email me directly, and by the time they got to the second page of my email inbox, I lost track of them while I had so many other urgent matters screaming for my attention. I had to block so many things out, I even had to tune out my own immediate family, including my husband. I'm not going to go into all the details of everything that was going on, but it was insane. Like, the kind of stuff I could write a book about. And I might.

My life is slowly starting to get back on track, and I am finally able to start talking to people again. Part of the reason for that is, I have help from the woman who sold me the water machine. She had a lot of urgent things going on, and just could not help me, in the last year, like she used to. But she is finally able to help me again, full time (the only days she can't call people are Sundays and Mondays). 

SO.....

If you were one of those people who tried to get in touch with me in the last year, please contact me again.  You can do so via the link to request a phone session. If you have previously tried to contact me, and are still waiting to hear back from me, I will call you at no charge, if you still need help. Just fill out this form, and please be sure to write in the notes that you have already tried to contact me in the past.

If you request information about the water or PEMF, I want to assure you that, at least for the next month or so, she WILL get back to you within a few days. She is still busy with her other job, but she is making some time for this, and I appreciate it, because the bottom line is, I just haven't had time to call every person who's wanted to talk. But I am hoping I will have more time in the future.

Thanks for your patience and understanding, and I hope that you have been able to at least get some useful information from this (free) blog. Please be sure to look at the links to the right, and if you're looking at this on your phone, please be sure to click on "view web version" towards the bottom of the page, so you can see the column on the right.

Ellie

Thursday, March 7, 2019

February / March 2019 update - Sorry I've been absent (this is why)




February / March 2019 update:
 

Hi, everyone. As you may have noticed, I have been pretty absent from this site while I was trying very hard to save my friend Jane (who was like a Mother to me), after she was diagnosed with Stage 4 cancer. I've been working on this post forever, and I'm sorry for the delay in posting this, but I feel like I've been on a rollercoaster that I couldn't get off for the last 9 months (longer than that, actually, but.... to describe the latter half as stressful, would be a grand understatement). 

I felt like I needed to give a really good explanation as to why I have been absent for so long, so that people could understand why I haven't been able to communicate as much as I (usually) wanted to. I used to have a lot more help, contacting people who got in touch with me, but lately it seems like everyone I know has been swamped (will explain more about this further down in this post).                                                                                                 

I have tried so many times, to write this post, but this was painful for me to write, and it always ended up turning into a damn novel I couldn't seem to shorten or finish. Honestly, for about a year and a half, I've had a hard time finishing a lot of projects. I think that's what happens when you are experiencing extreme anxiety. I don't know about you, but for me, anxiety = lack of focus, and I've been in anxiety overload.


Since about the time Jane started showing the first signs of a serious illness (the summer of 2017), I've been dealing with every negative emotion you can think of (in addition to anxiety). I could write a book about the reasons I was experiencing them all at once: sadness, depression, despair, frustration, guilt, anger, shame, fear, panic, and ultimately... I felt like a failure for not being able to save her.  Sadly, Jane passed away, and I've been trying to dig myself out of a very deep depression ever since. 

Jane had several different factors against her that I realize, would have made it just about impossible for her to beat her cancer. So I try to tell myself, I should focus on the fact that her life was extended, at least. Most people with cancer don't have all of those same factors going on, and some of them were HUGE. But I don't know if I will ever get over the fact that I wasn't able to help her turn things around for good. I still miss her every day.

It doesn't help that I feel like, I sort of made it my job, to give other people hope, but it's really hard to put on a smiley face when the bigger part of you just wants to crawl under a rock and cry. Like I said, Jane was like a mother to me in many ways, and losing her has left a huge hole in my heart.


As anyone trying to care for a loved one with late stage cancer has probably learned themselves: Cancer can be a vicious beast, and trying to turn someone around from it can be ALL CONSUMING. Especially if you're hell bent on saving a person's life, like I was. I assumed that because I was able to help my husband to recover from cirrhosis, then surely I must be able to do the same thing for Jane... but I was wrong, and it's been hard for me not to feel frustrated and defeated.  I had to give up a lot, to care for Jane. This blog is kind of like a ship I'd built, and when Jane got sick, I felt like I had to abandon the ship in order to try to save Jane... and myself. 

I need to point out that, if it wasn't for Jane, this "ship" never would have built at all.  It was because of Jane, that I moved to the place where I live, and if it weren't for that, I never would have met my husband (who was in the same city). Nor would I have been able to take the time to build this blog. So she really had to be my first priority, period.  

I had lived in Jane's house (a rental) for over a decade. She was our landlady, but she hated it when I called her that, because she knew she was more like family to me and my sisters. She was my Dad's best friend and partner, before he died, and she has spent more time supporting me (and my creative projects) than anyone ever has in my life. She didn't have any kids OR any family in the area, so I was the closest thing she had to a daughter, and I had to do everything I could, to save her. And sometimes, that meant like I had to work like a horse with blinders on, doing research, and anything else I could think of, that could help her turn things around. 


Trying to save Jane was like trying to prevent a massive tsunami, and I went from trying to save her life, to trying to save her house. I've spent the lasts few months trying to keep the house we're in, from going into foreclosure, and it's been a constant battle.


Quick note - I re-read this section below, and it made me go ugh, it REALLY needs some serious editing, but that would involve additional time I don't have right now. So if it seems like I'm going on and on about the same things, I apologize in advance. I don't mean to sound like Wikipedia's founder, Jimmy Wales, who makes me want to go Jesus Jimmy, stop complaining about needing donations.... either make Wikipedia a PAID-ONLY site, or use advertising, for god's sake. Nobody wants to hear you whine about your financial woes - just CHARGE THEM! And yet... here I am, doing kind of the same thing, because I'd LIKE to keep this site free to most people. 

If you've tried to get in touch...

Again, I want to sincerely apologize to anyone who has reached out to me, if you haven't heard back from me (or anyone else) yet. I tried to let people know that it might take a while for someone to get back to them, because I was usually unavailable (but I just didn't anticipate it would take so much longer than I expected, to get back to everyone). I did write on my blog that people who really wanted to talk to me, directly, could book an info session (during which I'm able to answer questions and explain things in more detail).  

For anyone who's tried to call me direct (without booking an info session): Why there are times when I CANNOT pick up the phone

I am still working very hard to get back on track and save Jane's house (the roof over my head) from foreclosure, and it's taking all my energy to do so. Please understand that I really LOVE talking to people and helping people. It's just that I can no longer afford to talk to people who call me direct (I apologize if you found my number online and I haven't been able to remove it yet). Someone with cirrhosis (or someone trying to deal with a family member who has it) needs a LOT of help, and there is just no way I can make that a 5 minute phone call. You cannot get off the phone with someone in a crisis, in less than half an hour (and honestly, it is usually more like 2 hours, when you add up the time I spend emailing them later). Which means that if I even pick up the phone at all, there is some urgent thing on my to-do list that won't get finished, which means there is some bill that probably won't get paid on time. 

I have always considered myself to be a high energy person, but I started to notice, last year, that when I get off the phone with a person who has cirrhosis (or a family member who does).... I only have half the energy as I did, before I got on the phone. I didn't notice this, at first, because I was usually so wired, I felt like I had energy to spare.  But after a while I started to realize, it was really hard not to absorb some of the anxious, frustrated energy of every person I talked to, in a crisis. And that "crisis energy" was starting to build back up, in me! If it was just one person, or five, or even 100, that would be one thing, but it wasn't. It is heartbreaking that doctors don't offer better solutions for people, but they don't, so there is never a shortage of people who really need help.  

Work vs. Volunteer Work

I am at a point right now, where every single thing I do, needs to be very clearly WORK-RELATED, and MOST of the work I have done, regarding this blog, has been volunteer work. Which I was happy to do in the past, but my family was NOT happy about it, and I can't blame them. I justified it for a long time, because I was helping people, and I remembered how frustrating it was, that there weren't a lot of people out there, who'd been through what I'd been through, when I DESPERATELY needed someone to talk to!

It feels wrong for me to not jump in and help people, because I know that the person I'm speaking with is usually going through a crisis. I've had people literally begging me to call them back, and a few people were in tears. NOT picking up the phone makes me feel like a horrible, mean person. But then that takes my crappy feeling to a whole new level, because I know I have already done a lot to help people for free, and feel like I don't deserve to feel like a bad person. I've spent at least a thousand hours working on this blog, so far. So in the back of my mind, I can't help feeling like... wait... I'm going through a huge crisis myself, and I've said this on the blog. Why are people asking me to just help them, if they're not willing to help me, in return? 

When being the Good Guy actually makes you The Bad Guy

When my parents were living together, when I was a kid, my father used to help a lot of people for little or no money. He wanted to be "the good guy" - and was always busy helping people, but not always getting paid for it. My parents fought about this, a lot, and now I understand why. My husband's ex wife is sooooo pissed at both me and my husband right now, because I don't get paid for a lot of the work I do, and that's been causing a HUGE financial strain on our family. I am starting to realize, I am repeating my Dad's pattern. 

I loved my Dad, but if I could go back in time and talk to him after he spent all day helping people while he wasn't getting paid, out of the goodness of his heart - while I was literally going hungry some days - I would have said, Dad: "You have NO BUSINESS helping someone who isn't helping YOU to support YOUR OWN FAMILY."

By writing this blog, I really felt like I was making an effort to help people, but if they needed additional support, I had to limit my time to just a handful of people, since I barely felt like I had 2 hours in a week, to spare. I didn't even have time for my own husband or family. I was so busy with helping people over the last 2 years (most of whom hadn't bought anything), I really neglected my family in a big way, and am trying to find ways to make it up to them. I hope the people reading this will be able to understand why I had to reserve my time for the people who were supporting me (by requesting a paid info-session), as much as I've tried to support them, by sharing resources on this blog that took me over 1000 hours to learn and write about.

When a loved one's illness takes you so far away from the things you need to do, to keep your own life afloat, you can find yourself in a state of panic, realizing that you literally do not have enough working hours in the day, to pay your own bills.
 
So, please believe me when I say, it wasn't that I didn't WANT to help the majority of people who contacted me. It was more so that there were days I felt like I couldn't even turn on my computer, because I was so overwhelmed, and knew that the more time I spent answering emails, the more I was going to keep sinking into a deep hole that was getting wider every day.

With everything going on with Jane, I've had very little time to work, so the time I did spend working was time that had to count (as if I was working at my old day job in corporate America). Every time I pick up the phone or send someone an email, it costs me money, in that it takes away from time I need to spend working (in other words, doing something that directly helps me keep a roof over my head).

This is a very awkward thing for me to talk about. I have a very deep-rooted belief that we are all here to help each other - and for whatever God forsaken reason, this used to make me feel like I should try to help everyone, for free, all the time. I think I got it in my head that this is somehow "normal," because - again - that's what my Dad used to do, and I often see my sister doing the same thing. But what happens when you set out to "save the world" is, your end up hurting your own family, in the process.  So I had to do a major priority adjustment, and I've made the conscious decision to help myself and my own family, before I can help anyone else. 

There is a LOT you can do to help yourself - please read the posts in the right column of my blog

I have said this before but I'll say it again.... My husband was was never just drinking detox water. He was always doing about a dozen different things at once, and we didn't even know about the water or the first few years after his initial diagnosis, so I'm hoping that everyone who's tried to get in touch, who hasn't gotten a callback about the water yet, has been able to make use of the many free resources I've provided on this blog, which helped my husband tremendously when he was first diagnosed in 2011, and when he went into the hospital again in 2013/2014. I actually had to pay good money to learn whether some of these things worked, or whether they didn't (and my husband had to be a guinea pig for the majority of it).

Some people who wanted additional information did book info sessions, but for anyone who did not: Again, I'm truly sorry if the people I'd asked to do callbacks, haven't been able to get in touch with you. It was ultimately my fault for not notifying people sooner, that a major backlog was developing, and that the people I'd hoped could help me, weren't able to get through the whole list. 


The woman who used to help me with calls and emails about the water, got very caught up at her other job, and she didn't have as much time to help me with all the calls and emails (there were other factors, but that was the main reason). She has been extremely helpful to me in the past, but the reality is... it takes 2 hours per person, to fully educate a person about the water, and to be honest, neither of us have had that kind of time, recently.


My private blog about the water

I spent several months building a private blog that I could use to educate people about the water, so they could read all about it on their own time. For a while, it was a great way to tell people all about the water, without having to spend hours talking on the phone, or sending emails. But for whatever reason, Blogger developed a glitch in the system that prevented many people from being able to get access. I think I *MAY* have finally figured out the solution, but for the last 9 months or so, it has been sooo frustrating. I contacted Blogger about it a few times, but never heard back from anyone, and my efforts to find the answer on how to fix this problem on my own, via a google search, yielded no results. 

So I felt like I had to send emails instead, and it literally takes about 12 emails per person, to properly educate someone about the water. I quickly found myself getting very behind in work, and feeling completely overwhelmed.  


My husband has tried to help me out, making calls to people who've requested info about the water, but he works 50 hours a week at his day job, and has to spend extra time with his kids lately (one of them is kind of going through a crisis). I gave him a list of people who needed callbacks, but he hasn't been able to get through the whole thing. He did make a lot of calls, but he has a really hard time emailing people, and that's a critical part of the process. My husband is a really smart guy, but he is also a really slow typist. Why touch typing is not a necessary class in every school is beyond me!

I have been wanting to hire someone to help me with calls and emails, but I have to be picky about who I choose. My goal has been to hire someone, and send an email to anyone who hasn't heard back from me, and ask them if they would mind if someone else contacted them with the information they may have requested (they would not see the details of your situation - I would remove that part).  

I even asked my two most trusted girl friends if they could help me, but they were going through their own crises as well!! I should point out that I live in area where it seems like, everyone I know is constantly scrambling to just keep a roof over their head. My husband and I often talk about moving to a nice, quiet farm, but we're still a ways away from being able to do that.

I would have just disabled the page about the water (or peoples' ability to request info), but over the years I have created soooo many links to the page, from all over the website (not anticipating I'd ever be going through this kind of situation where I found it so difficult to keep up), that I didn't feel like that would fix the problem, either. I've been trying to get all the info from my Blogger blog about the water, transferred over to a different website, because I don't know if I can trust Blogger's private blogs as a reliable resource in the future (even if I am hopeful that I've figured out how to fix the current glitch). It's such a big project, I didn't have the ability to get it all done in a timely manner. It's still not all transferred yet, but hopefully this post will hopefully explain to you what's been going on.

I have been trying to make some kind of affordable resource guide that people can purchase, that will have a lot of information that I have found to be helpful (organized in an easy to read format).  I CANNOT give medical advice, but I can share my research, and give my own personal theories about why certain things may have worked for my husband. I want to make it so that there's just one document (or blog) with info about the water and other things my husband has been doing. I do feel like it's important to see the whole picture, because the water is not a CURE for anything. There is no magic "fix all" product I've ever seen. My husband was always doing about 10-12 things at once... it's just that, it seemed like the water appears to have helped him with detoxification, better than anything else I've ever seen.

In my strong opinion, there are four major elements of health, that have to be addressed, in order for a person to truly heal from cirrhosis, and I plan to talk about these things in my resource guide (I do talk about them on the private blog I made for people who book info sessions, so if you book one, you can read about it).



Why In-Depth Research is CRITICAL


Please believe me when I say, if a person tells you the name of a type of water that's worked for them, but they do not give you a VERY THOROUGH education about this water, they are doing you a huge disservice.  And unfortunately, half the companies you will find online, that promote this type of water, will not give you a real education about it (though they have really good marketing materials that will make it appear as if they are thoroughly educating you). But you would not believe what is left out of those materials.  

Just giving a person half an education about the water is kind of like handing someone an envelope that appears to contain a trip for a vacation to a beautiful foreign country.... but you're really just handing them a one way ticket, without a hotel room. After they arrive, their tour guide bails on them, and they have no idea what to do. They don't realize, their trip is about to turn into somewhat of a nightmare because they're unfamiliar with the territory, and are going to have to spend all their "vacation time" trying to figure things out. 

Most people don't understand anything about this type of water, when they first learn about it. It's foreign to just about everyone. And many companies who make it, take full advantage of this fact. They know that, when someone doesn't know the territory, it's very easy for people to believe everything they say, because they will believe the people who look the most trustworthy. I learned, the hard way, that the companies that looked the most trustworthy, were the ones that were telling me the biggest lies. And sadly, many people have fallen for what they say (but they don't realize they got scammed, until several months after they've already made a purchase). 

Part of the reason I started to burn out 

I have had a lot of people contact me, asking me about the water, and I'd spend hours with some of them on the phone... sometimes doing conference calls with their family, and sending over a dozen emails!  But then.... they didn't actually look at all the materials I sent.  Many people would just disappear into the wild blue yonder, and when I'd never hear back from them again, I just cringed, knowing that some of them had probably fallen for one of those deceptive companies. Most people are only able to make ONE purchase, and if they find out later, that they made a purchase that wasn't actually working for them, they were stuck with it (some companies give false guarantees and warranties that aren't actually honored).

Sometimes, people would contact me to say that they'd fallen for what those other companies said (aaagh) and they had made a purchase that they regretted, but now were ready to get the same type of water we have (every once in a while, a person can afford to make 2 purchases, but it's not common). Again...  I used to feel really guilty about this (and somewhat responsible), because I felt like it was partly my fault that they'd wasted a lot of money.  I'd always think, how could I have made those materials faster and easier to read, so they actually WOULD read what I sent??  Or did they just not believe what I was saying?

So, I really made a huge effort to make the materials easier and faster to read (or at least, skim through), over the years. But still... there is only so much I have time to do. If a person still isn't going to look at all the information I've put together.... that's on them, not me.  Educating oneself about this water DOES require a lot of education.... but it's WORTH IT! And I've made an effort to condense the info in such a way so that most people could probably make a decision in about 2 hours (vs the 2 weeks it took me, to make up my mind).

I know all this probably sounds overly dramatic, but I have seen too many people end up in worse situations when they're not fully educated about the different types of water that are out there. The biggest mistake people make, is when they find materials that claim to be educational, and they have no idea that half that stuff is made up. It's sooooooo hard to believe (I didn't believe it, either), but I've found resources that can show you what's real, and what's not. 


If you still want information about the water...

If you want to know more details about the water, you can still fill out a contact form, but like I said earlier... please understand that I'm still getting through this backlog. I am planning to hire someone to help me, soon.  Please know that I will probably not be the person who calls you on the phone (I've been able to make a few exceptions when I had time, but I just don't have enough time to do it on a regular basis). I will not share your personal details with the person who ends up helping me - just your name and contact info. I do speak to other people (without cirrhosis) about the water, so the person going through the list I give them will not know your story, or what condition you have (they wouldn't be able to talk to you about anything besides the water, anyway). But in the event that you do buy a machine, I will know who you are and what's going on with you, and I'd love to talk to you about your situation at that time, if you'd like. 
 
If you want to book an info session...

I still do have some time to do a couple of info sessions every week (I typically end up spending a few hours with each person, when you add up the time it takes to do email follow ups as well). Because of the time it takes, I'm not going to be able to keep doing these info-sessions for long. There are SO many things I put on hold in the last 5 years, that I really need to get back to (including spending time with my own family). So, as soon as I can come up with a more efficient way to share what I've learned, I'm going to stop doing the live calls, and will just reserve my time for people who've gotten machines from us.  Those who get any type of machine from us, can also speak with my husband, if you'd like to, and have any specific questions for him : ).

Again... thank you.

I want to give my sincere thanks to everyone who showed some patience and understanding while I've been going through this crisis. I'm truly sorry to have let some people down while I've been trying to get my own oxygen mask on. It hasn't been firmly affixed for a long, long time, and I'm going to try to put it on, and keep it on, this year. When I do, I want to help as many people as I can.

When life throws adversity in our direction, it might take us down for a while, but it's up to us, to learn from those bad experiences, and try to figure out how we can use those bad experience as fuel, to make our lives better (and hopefully, the lives of those around us). While you're going through your own struggles, I hope you will be able to find some useful information in this blog, and when you're able to find something that works for you, I hope you will take the time to share it with others.

Sincerely,


Ellie


Saturday, September 22, 2018

Congratulations to my Hubby, for 5 years of Sobriety!

I just wanted to do this quick post to congratulate my husband on 5 years of sobriety.  I haven't had time to do a lot of posting lately, since I'm taking care of a friend with late stage cancer, but my husband is very proud of his sobriety, as he deserves to be. 

He quit drinking completely, 5 years ago - just before his birthday. Unfortunately, we learned the hard way that quitting is just the first step in recovering from cirrhosis, but it's a HUGE step, and 5 years is truly an amazing feat. I'm so proud of him, and want to thank him for having the strength to quit... and for the fact that I never have to worry about him getting a DUI!

For those of you who are still wondering if you should quit drinking, I assure it is WORTH IT, and I can assure you that your sobriety will improve the quality of life not just for yourself, but just about everyone around you!

Congratulations honey. You did good and I'm very proud of you : ). Thank you for letting me share your story, and I hope it will continue to inspire others.

xoEllie


Wednesday, September 19, 2018

A really fast, easy way to get lots of nutrition into your body

Since my husband had incredible results with taking Visalus supplements in 2011, I have recommended Visalus products to many, many people (the shakes and also the Visalus Vi Pak vitamins). I swear, this stuff made a huuuge difference in his health!! 

Well, in February of this year, I talked to a man from New Orleans who had inquired about the water, and in telling me about it, he mentioned some of the things that seemed to help him with his cirrhosis, and he swore by this nutritional supplement he'd been taking, called "Vemma."  (UPDATE: Please read this article released by the CEO of Vemma, that warns people about taking Vemma PM, with medications... I believe Vemma PM is different from regular Vemma, but to be on the safe side, I thought it would be worth posting the press release here: http://vemma.com/eNews/manual/vemma_pressreleases/2011/2011-0222-PM-importantmessage/index.html).

Vemma Mangosteen Plus with Essential Minerals Two 32 Oz Bottles

Now, this guy RAVED about the stuff, but he wasn't even selling it, NOR could he even tell me how to get it!  It was like, some distributor had told him about it, and he got on the auto ship through the company, but then he didn't know how to even get ahold of the distributor anymore, but it worked really, really well for him.

I did some googling and found the company, and kept meaning to order it for my husband, since he feels that the Visalus vitamins are a bit pricey, but I never got around to it, and kept losing the link for the stuff.

Well, as some of you guys know, I am caring for a friend with stage 4 cancer, and she has been drinking the Visalus shakes, but she feels that they are too thick for her, and she doesn't like anything that is too sweet, so she really wants something that's easier to take. She has lost WAAAY too much weight, so I was desperate to order this stuff for her today.

I dug around my notes for the name of this stuff, and tried to order it online. I got so frustrated, because their website was just too confusing for me (the Visalus website is the same way!)

I tried to add this 2 pack of the Vimma liquid supplement (what the guy in New Orleans told me about), but after I placed the item in my cart, I couldn't find where the shopping cart WAS, so I couldn't even figure out how to check out!

So, I gave up and started googling for a local distributor, and couldn't even seem to find someone. So I kept looking, and lo and behold, I discovered that you can buy this stuff on Amazon! Not only will it be faster to arrive, but I'm going to save 40 bucks!!! Normally it's over $100 through the official company site, but it's about $67 (with tax AND shipping) through Amazon.

See, this is why Amazon is putting so many people out of business. I do feel a little bit guilty buying this kind of thing via Amazon because that makes it more difficult for distributors to make a living, doing what they do, and truth be told, distributors for these kinds of sites are not "supposed to" sell on eBay or Amazon.

But I WOULD HAVE ordered it through the regular site if 
a) I could have just FOUND SOMEONE, locally, who was willing to sell it, and 
b) If their website wasn't so darn confusing!

Anyway, I thought I'd mention this stuff to you guys, I've been meaning to do a post about it, but it's fallen to somewhere in the middle range of an extremely long to-do list. 

I will let you know how it goes, with this stuff. 

Ellie

Saturday, August 25, 2018

Study finds no amount of alcohol is safe to drink

My husband told me he wanted to share this with his kids. So I thought it was worth posting, here.


Monday, August 13, 2018

One more reason why it's important to EXERCISE when you have cirrhosis

I can't tell you what to do, and you should check with your doctor before starting any type of exercise regimen. But I have to say, it truly seems like the people who exercise and work out, seem to be the ones who get the best recovery results when they have cirrhosis.



https://www.ncbi.nlm.nih.gov/pubmed/10642360


J Appl Physiol (1985). 2000 Jan;88(1):41-6.

Intense exercise stimulates albumin synthesis in the upright posture.

Abstract

We tested the hypothesis that an elevation in albumin synthetic rate contributes to increased plasma albumin content during exercise-induced hypervolemia. Albumin synthetic rate was measured in seven healthy subjects at 1-5 and 21-22 h after 72 min of intense (85% peak oxygen consumption rate) intermittent exercise and after 5 h recovery in either upright (Up) or supine (Sup) postures. Deuterated phenylalanine (d(5)-Phe) was administrated by a primed-constant infusion method, and fractional synthetic rate (FSR) and absolute synthetic rate (ASR) of albumin were calculated from the enrichment of d(5)-Phe in plasma albumin, determined by gas chromatography-mass spectrometry. FSR of albumin in Up increased significantly (P < 0.05) from 4.9 +/- 0.9%/day at control to 7.3 +/- 0.9%/day at 22 h of recovery. ASR of albumin increased from 87.9 +/- 17.0 to 141.1 +/- 16.6 mg albumin. kg body wt(-1). day(-1). In contrast, FSR and ASR of albumin were unchanged in Sup (3.9 +/- 0.4 to 4.0 +/- 1.4%/day and 74.2 +/- 8.9 to 85.3 +/- 23.9 mg albumin. kg body wt(-1). day(-1) at control and 22 h of recovery, respectively). Increased albumin synthesis after upright intense exercise contributes to the expansion of greater albumin content and its maintenance. We conclude that stimuli related to posture are critical in modulating the drive for albumin synthesis after intense exercise.
PMID:
 
10642360
 
DOI:
 
10.1152/jappl.2000.88.1.41

Berkson Study: Adverse Effects of High Doses of Intravenous Alpha Lipoic Acid on Liver Mitochondria

I've heard that too much ALA can damage your mitochondria, but this is the first time I've seen the study he did, that says this.

I'm a HUGE fan of the Berkson protocol, and truly feel that it saved my husband's life, but I also know that too much ALA can damage the mitochondria (he says so in this interview on THIS PAGE). But this is the study that shows it.  

Thought I should post it here.  The link is below.

https://www.semanticscholar.org/paper/Adverse-Effects-of-High-Doses-of-Intravenous-Alpha-Vigil-Berkson/b706f02b1a88f58f14dec92421e9dbfdec63bc55



Adverse Effects of High Doses of Intravenous Alpha Lipoic Acid on Liver Mitochondria

Alpha lipoic acid (ALA, thioctic acid), among other actions, is an essential coenzyme in the conversion of pyruvate to acetyl co-enzyme A. Therefore, it is necessary for the production of energy for aerobic organisms. Scientists have found that it can be used medically to help regenerate liver tissue, reverse the complications of diabetes mellitus, slow or stop the growth of cancer cells, and chelate heavy metals, among other actions. In this article, the authors describe the cellular mitochondrial damage from excessively high doses of this beneficial agent. LESS