I got the info below, regarding hemochromatosis, from THIS PAGE. I love talking to new people... I learn new things every day! : ) (Thanks to "G" for the tip : )).
Ellie
HEMOCHROMATOSIS OVERVIEW
Hemochromatosis is a condition that causes excess absorption of iron from the digestive tract. Over time, the excess iron accumulates in tissues throughout the body, leading to iron overload. Signs of iron overload may include sexual dysfunction, joint pains, weakness, changes in skin coloration, liver damage (cirrhosis), heart failure, diabetes mellitus, and rarely, thyroid disease or liver cancer.
Early identification and treatment of hemochromatosis can prevent complications. Treatment typically involves regular phlebotomy (removal of blood) since blood cells contain an abundance of iron.
I looked on Amazon for different brands of IP-6 that had reviews with the word "hemochromatosis," and these 3 brands did have positive reviews (one each):
ByMark McCoskeyon February 26, 2015
I have Hereditary Hemochromatosis. I've read online that IP6 helps with the elimination of excess iron in the blood. I take 2 capsules first thing every morning with 500 ml of water. A straight weekly phlebotomy lowered my ferritin by 300 points over 4 weeks. The same with the added 2 capsules resulted in a lowering of my ferritin by 1000 points. It hasn't continued at that pace. I've been using IP6 for about 6 months. My ferritin is now down 93%.
Dr. Shamsuddin's Original IP-6 - Gold Immune Support Formula With Stevia Tropical Fruit Flavor - 14.6 oz
on August 19, 2016
My mom has been taking this for her hemochromatosis after I researched this product... amazingly her levels have gone down and has not needed her blood pleubotomies..She has been taking it for about 5 months..she takes once a day in the am with juice..i read that this product helps many issues.. she also had hep b and was taking this product along with her hep b medications.. She no longer has Hep b as of this month which she used the new medication that is for 3 months and eradicates Hep B... My mom is 73 years old... this product keeps her healthy and energetic..
I highly recommend this product IP6....
I highly recommend this product IP6....
Posted by Kathleen (Los Angeles, Ca) on 01/29/2013
I suffered from Hemochromatosis and have been having phlebotomies for almost 20 years. In the beginning I was having one pint depleted once a week. Then I got bad so quickly the started drawing two... Yes 2... Pints of blood a WEEK! This went on for over a year. Then once a week for several years.... Until I found ip6 [inositol hexophosphate]. Once I started taking it regularly, I didn't have to have a phlebotomy for 2 years! Not one treatment for two whole years! I stopped taking it for a while and recently started again. I'm having phlebotomies about 3x a year now and I'm happy and I thank God I'm alive! I hope this helps....
Hemochromatosis Remedies
Jul 25, 2016
What Is Hemochromatosis?
A genetic disorder, hemochromatosis is a condition in which the body renders and stores too much iron. Typically, the hereditary issue causes the body to absorb too much iron from the food an individual eats, which leads to excess iron stores in the organs, particularly the liver, heart and pancreas. As the iron stores increase, life-threatening conditions may arise including cancer, heart arrhythmias and cirrhosis of the liver.
While some individuals with hereditary hemochromatosis never experience symptoms, several of the signs and symptoms associated with the condition mimic those of other common health conditions. Symptoms typically include joint pain, fatigue and overall weakness. Generally speaking, hemochromatosis is more likely to be serious in men. As such, the typical first sign of the disease in males involves organ damage including joint pain, diabetes, loss of sex drive, impotence and heart failure.
While some individuals with hereditary hemochromatosis never experience symptoms, several of the signs and symptoms associated with the condition mimic those of other common health conditions. Symptoms typically include joint pain, fatigue and overall weakness. Generally speaking, hemochromatosis is more likely to be serious in men. As such, the typical first sign of the disease in males involves organ damage including joint pain, diabetes, loss of sex drive, impotence and heart failure.
The actual cause of hemochromatosis is a genetic mutation that affects the body’s absorption of iron. As such, the condition is genetic and passed from parents to children. The mutated gene that is typically involved in the development of hemochromatosis is labeled HFE, and the common mutations are C282Y and H63D. An individual must inherit two of the abnormal genes, one from the mother and one from the father, to develop the disorder.
Natural Hemochromatosis Remedies
One of the most effective ways to maintain appropriate iron levels is to periodically donate blood. Typically donations can be made every eight weeks. Herbal treatment options are also effective. Dandelion, wild hyssop and milk thistle supplements help regulate the body’s systems and minimize iron storage. Calcium, vitamin B6, vitamin E, manganese and black tea are also effective treatment options. Additionally, individuals affected by hemochromatosis should avoid vitamin C supplements and drink green tea, as it is a powerful chelator that works to remove iron from the body.
- Ted's Remedies for:Hemochromatosis
- Ask For Help Here:Contributors' Q&A
Remedies for Hemochromatosis
Hemochromatosis
Natural Cures
)Ayurvedic Treatment
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Posted by Vadim (Washington, Usa) on 01/09/2013
Ayurvedic Treatment for Hemochromatosis and Ferromagnetic Cancer Theory.
The most effective treatment for hemochromatosis is to reduce iron in the body by phlebotomy (withdrawal of blood from the arm veins). The Ayurvedic treatment for hemochromatosis is aimed at removing the excess iron from the body, preventing excessive iron absorption, treating the symptoms and preventing complications. High iron absorption from the intestines is prevented using medicines like Kutaj-Parpati, Panchamrut-Parpati, Suvarna-Parpati, Sukshma-Triphala, Triphala (Three Fruits), Arogya-Vardhini, Bilva-Avaleha, Psyllium (Plantago Ovata), Gandharva-Haritaki, Kutki (Picrorrhiza Kurroa), Abhrak-Bhasma, Praval-Panchamrut and Trivang-Bhasma. Iron Conception (Ferromagnetic Cancer Theory): CANCER is the generic term used to describe a group of disorders caused by an uncontrolled multiplication of cells; any cancer should be interpreted as intracellular superpara-ferri-ferromagnetic infection; intracellular molecules FeO;Fe2O3;Fe3O4 are the main 'creators' of intracellular superpara-, ferri- and ferromagnetic nanoparticles; any cancer can attack patients with/without iron overload and patients with iron-deficiency anemia.
Cancer researchers can use Ayurvedic treatment for hemochromatosis as Ayurvedic treatment for cancer because any cancer is a subtle iron disease.http://www.
Blood Donation
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Posted by Suzy (Eugene, Or) on 12/01/2012
I do not want to open a can of worms here... Just wondering if anyone else has found relief from any problems by becoming a regular blood donor? I have been donating on a regular basis for more than 6 years. I have noticed a decline in the number of headaches I get. Also... I tend to run a little rich in iron in my blood so regular blood donation also keeps that in check. I do not have a lot of health problems- but I notice I feel more "Up" after donating. I realize many of the issues that people on this site would exclude them from blood donation, but among those who can and do what has your experience been?
Replied by Mr. Ree
Nowhere
12/02/2012Giving blood will lower your ferritin level which means iron level. This in turn will help with people with hepatitis c as the virus NEEDS iron to replicate. I know people who JUST give blood once a month and have NO problems with their dis-ease...
You may have hemochromatosis... Get checked please as this is an inherited problem that is easily treated with giving blood... Any one want further info on hep-c and iron, "Google" "Rousch hepatitis C" and read an amazing article about hepatitis c. This one will make you think...
Replied by Alegreviajero
Nha Trang, Vietnam
12/04/2012I also have been a regular blood donor more than 200 times (I'm 68). I keep donating here in Vietnam (I told them my age, but they so badly need blood, the take a minimum each time). I also feel "good" each time. It is, I've read because of too much iron accumulation in our blood at least for some.
One word of evident caution: To give blood in order to primarily "feel good" is not exactly the right attitude. We need to remember that someone might NOT "feel good" if we know we cannot make a donation at some point. I'm sure everyone understands this.I've read, a long time ago, that woman, because of their menstruations, are in someway "giving blood" getting rid of excess iron without knowing it. After their menopause, most of their symptoms of "bad feelings" "could" be related to not "giving blood" anymore. So, maybe, if they can, they should go to give blood every 90 days and iron. It could help.For the same reason, especially men, if possible, we should consider giving blood every 90 days. There is absolutely no side effect, no dependence and no harm except for that little needle pinch!But If anyone knows to be lacking iron, or having any other health issue, discuss this clearly with the nurse before making a donation. To give blood is not always a good thing in some cases.
Replied by Martina
Londonderry
04/24/2015
Replied by Liz
Massachusetts
04/24/2015I've never heard of anyone who was advised not to give blood because their iron is high. It's typically the opposite--they won't let you donate if your iron is low. It is actually good for those with high iron to donate blood. It is often recommended as a 'treatment' for high-iron blood.
I'd get a second opinion. :)
Replied by Colette
Usa
05/05/2016
Replied by Cursed Viking
Fla
06/10/2016I have hereditary hemochromatosis and the Dr wanted me to have blood removed. I was going to have to pay for them to throw it away. The American Red Cross will not take my blood, but other blood banks will. It has been FDA approved for donation for years, but the Red Cross still refuses. Shop around to find a place that will take it. You will feel better and so will the lucky person who gets your 'super blood'.
General Feedback
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Posted by Cindy (Flint, Mi) on 01/22/2013
I am an Afro-American woman in her 50s that has been diagnosed with non-herditary hemocromatosis but I also have very low hemoglobin levels so I cannot donate blood or have phlebotomies. I am not a drinker or drug abuser and never have been. I am getting worse and my doctor has done everything he knows to do. I go to a cancer center and they are very thorough and very knowledgeable but still of no help. I just wanted to let all of you know that I am so glad this site is here and am requesting any advice on what I can do to slow down iron absorbtion and raise my HgB levels at the same time. I appreciate any comments and offers of advice. God bless all of you and I look forward to hearing from you.
Replied by Lisa
So Cal
10/01/2013
Replied by Mr. Ree
Usa
10/03/2013Have a phlebotomy and your iron levels (ferritin) will go down 30-50 points from just one treatment. It's covered by insurance. Get your ferritin below 50 points and you'll be fine... This applies very much to hepatitis c people as less iron means your enzymes go down as well. Way down... No drugs no supplements... just a phlebotomy...
Replied by Rsw
Uniontown, Oh
10/03/2013I have high iron levels and poor insurance coverage. I found out you can go to a blood donation center and donate for free, or in my case, since I have had Hep A, I got an order from my doctor and paid $20. If I had homochromotosis (mine was slightly lower than this), it would have been free with a dr order. This was at a blood donation center run by a local hospital.
Replied by David
Nanning, China
03/07/2014Hi Cindy. Drinking tea, green or black after meals can inhibit iron absorbtion. Ditto, dairy though its downside is that sugars exacerbate liver heat and can make you irritable. I recommend that you check out the iron disorders institute whose forums and expertise have proven invaluable to many. God bless you from China!
Genetics
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Posted by Catherine (Wellington, New Zealand ) on 07/14/2011
About iron and cancer.. The body's defence mechanism when pathogens, parasites or cancer cells are present is to withdraw iron from the blood and store it in ferritin molecules. This in turn shows up as low iron levels in the blood (anemia) Not to be alarmed, not all anemia is iron related, it can be brought on by low Vitamin B levels. When a blood test is required to measure iron in the blood it is a good safeguard to also have a serum ferritin check as well to measure how much iron is being stored!Anyone of Celtic ancestry should have their ferritin levels checked in case they have the iron storage disease called hereditary hemochromatosis. This condition causes much misery and limited life span from such things as liver cancer, heart disease, stroke, diabetes2, arthritis and other health conditions. Males are affected sooner than females whose iron levels are reduced by their menses and childbirth. After menopause they soon catch up (which is why their rate for heart disease increases then). Statistics show that 0.5% to 1.5% of the population (depending on racial mix) can have the gene for this disorder. It runs in families and members who do not have the condition are likely carriers of the gene. We have all heard the stories of a man who died of cirhossis of the liver in spite of being an avowed tee-totaller, and the mourners at the funeral whispering how he must have been a secret drinker to have had such a disease!! Not so, poor man was a victim no doubt of hemochromatosis and the massive amount of iron stored in his liver.
Ip6
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Posted by Kathleen (Los Angeles, Ca) on 01/29/2013
I suffered from Hemochromatosis and have been having phlebotomies for almost 20 years. In the beginning I was having one pint depleted once a week. Then I got bad so quickly the started drawing two... Yes 2... Pints of blood a WEEK! This went on for over a year. Then once a week for several years.... Until I found ip6 [inositol hexophosphate]. Once I started taking it regularly, I didn't have to have a phlebotomy for 2 years! Not one treatment for two whole years! I stopped taking it for a while and recently started again. I'm having phlebotomies about 3x a year now and I'm happy and I thank God I'm alive! I hope this helps....
Replied by Lea
Colorado, US
04/19/2015Hi Kathleen,
Just wondering what brand of IP6 you find most effective? Thank you!
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